Comments on: Gastroparesis? Not Really, but Maybe Just Barely http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely Fiction has to be plausible. Reality is under no such constraint. Thu, 26 Jan 2012 04:13:35 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: summer http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-82060 summer Tue, 19 Jul 2011 23:45:05 +0000 http://www.gnorb.net/?p=1126#comment-82060 I was diagnosed with gastroparesis when I was 15 and I am now 16. But I have suffered from ulcers, and acid reflux since I was 9! I now have an ulcer and gastroparesis at the same time and have developed hypoglycemia due to it. I can actually feel my food digest ( if it does) its extremely painful and wierd. The doctor didn't believe me till I had the gasfteic emptying test. I couldn't see the screen buut was able to tell them when the food had traveled and when my stomach actually moved and it scared the hell out of the nurse because I was able to tell her. Having a nutrition drink for breakfast before maybe having another small breakfast in a dew hours, helps the stomach slowly wake up and work better through out the day.. I basically live off of those and smoothies, and soft foods other wise I will get extremely sick even in the hospital. Over time I have learned what I can eat and digest easily and what I can't. Although I am usually under weight I.have learned how to keep a better diet. They tried me on medications but I'm either allergic or don't respond so I'm all on my own using diet and exercise. Becoming vegetarian helps, the stomach for most of all people with this have a hard time digesting meat unless it is very lean. I hope you get better. I was diagnosed with gastroparesis when I was 15 and I am now 16. But I have suffered from ulcers, and acid reflux since I was 9! I now have an ulcer and gastroparesis at the same time and have developed hypoglycemia due to it. I can actually feel my food digest ( if it does) its extremely painful and wierd. The doctor didn’t believe me till I had the gasfteic emptying test. I couldn’t see the screen buut was able to tell them when the food had traveled and when my stomach actually moved and it scared the hell out of the nurse because I was able to tell her. Having a nutrition drink for breakfast before maybe having another small breakfast in a dew hours, helps the stomach slowly wake up and work better through out the day.. I basically live off of those and smoothies, and soft foods other wise I will get extremely sick even in the hospital. Over time I have learned what I can eat and digest easily and what I can’t. Although I am usually under weight I.have learned how to keep a better diet. They tried me on medications but I’m either allergic or don’t respond so I’m all on my own using diet and exercise. Becoming vegetarian helps, the stomach for most of all people with this have a hard time digesting meat unless it is very lean. I hope you get better.

]]> By: Gnorb http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-82034 Gnorb Wed, 01 Jun 2011 17:59:01 +0000 http://www.gnorb.net/?p=1126#comment-82034 Thank you for your note. I'll be emailing you a more thoughtful response. All the best. Thank you for your note. I’ll be emailing you a more thoughtful response.

All the best.

]]> By: Catherine http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-82029 Catherine Wed, 25 May 2011 18:31:24 +0000 http://www.gnorb.net/?p=1126#comment-82029 Hi! I don't know you, was just doing some searches for GP. I also showed "borderline" with my gastric emptying study but since my symptoms are so bad my gastro doc said he just considers it to be GP and is treating it as such. I am on Erythrocin 4 times a day and also Prevacid for the acid. It's working to alleviate the pain about 80%. This means I am not miserable and can usually just distract myself from the pain. It also means it can get worse sometimes to the point that I cannot lie on my stomach and have to wear sweatpants. I think until this happens to a person it is difficult to imagine... Anyway, I also had a very horrible bout with influenza that just lingered and lingered. I was in bed for about 10 days, then was fragile for about a week. I had H1N1 the year before and it was not as bad as this virus. I am serious...H1N1 was easy compared to this random flu. It was just abnormal that I could not shake it. I am 32 years old, normal weight, very active, otherwise very healthy (or was!). The symptoms of the GP started about a week after emerging from my deathbed. I have heard so many stories about having a bad illness like this and then suddenly having GP. I also had h. pylori with the GP. I don't know if this was a coincidence, or maybe not so much of a coincidence? I think it might make sense that food sitting in the stomach for hours on end could cause overgrowth of bacteria. Most people contract h. pylori at some point in their life and the body just overcomes it, they never know it was even there. But it got horrible for me, I couldn't get up in the morning (DEBILITATING fatigue), horrible headaches, body aches. Since taking the meds for the h. pylori I have boundless energy, no head or body aches, but tummy issues remain. Fun fun. Lots of Ensure drinks for me when this gets bad. At other times I can eat normally. It's random and makes life scary every time I sit down to a meal. I don't know if I'll make it or not...no way to live... It's very encouraging to know you are getting better. But you haven't updated in a year...I am wondering how you are doing these days? Thanks for sharing your info. It's at least reassuring to know others struggle with this. It can get lonely and depressing. I am just grateful I have been able to maintain a normal weight over the past 5 months with this. All the best!! Catherine Hi! I don’t know you, was just doing some searches for GP.

I also showed “borderline” with my gastric emptying study but since my symptoms are so bad my gastro doc said he just considers it to be GP and is treating it as such. I am on Erythrocin 4 times a day and also Prevacid for the acid. It’s working to alleviate the pain about 80%. This means I am not miserable and can usually just distract myself from the pain. It also means it can get worse sometimes to the point that I cannot lie on my stomach and have to wear sweatpants. I think until this happens to a person it is difficult to imagine…

Anyway, I also had a very horrible bout with influenza that just lingered and lingered. I was in bed for about 10 days, then was fragile for about a week. I had H1N1 the year before and it was not as bad as this virus. I am serious…H1N1 was easy compared to this random flu. It was just abnormal that I could not shake it. I am 32 years old, normal weight, very active, otherwise very healthy (or was!). The symptoms of the GP started about a week after emerging from my deathbed. I have heard so many stories about having a bad illness like this and then suddenly having GP.

I also had h. pylori with the GP. I don’t know if this was a coincidence, or maybe not so much of a coincidence? I think it might make sense that food sitting in the stomach for hours on end could cause overgrowth of bacteria. Most people contract h. pylori at some point in their life and the body just overcomes it, they never know it was even there. But it got horrible for me, I couldn’t get up in the morning (DEBILITATING fatigue), horrible headaches, body aches. Since taking the meds for the h. pylori I have boundless energy, no head or body aches, but tummy issues remain. Fun fun. Lots of Ensure drinks for me when this gets bad. At other times I can eat normally. It’s random and makes life scary every time I sit down to a meal. I don’t know if I’ll make it or not…no way to live…

It’s very encouraging to know you are getting better. But you haven’t updated in a year…I am wondering how you are doing these days?

Thanks for sharing your info. It’s at least reassuring to know others struggle with this. It can get lonely and depressing. I am just grateful I have been able to maintain a normal weight over the past 5 months with this.

All the best!!

Catherine

]]> By: Gnorb http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-81787 Gnorb Thu, 27 May 2010 14:06:08 +0000 http://www.gnorb.net/?p=1126#comment-81787 Just as an update: May 27th, 2010 I was pronounced "cured" of my gastroparesis. Had another gastric emptying test done 2 days ago and the results showed a 1/2 emptying time of 60 minutes. Every day, in every way, I am better and better. Many of the symptoms remain, although things are improving. Still overly acidic, still on Nexium, but working on getting off of it. Looks like that part is tied to my weight loss, however. Still, great news. Just as an update: May 27th, 2010 I was pronounced “cured” of my gastroparesis. Had another gastric emptying test done 2 days ago and the results showed a 1/2 emptying time of 60 minutes.

Every day, in every way, I am better and better.

Many of the symptoms remain, although things are improving. Still overly acidic, still on Nexium, but working on getting off of it. Looks like that part is tied to my weight loss, however.

Still, great news.

]]> By: Austin http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-81334 Austin Fri, 27 Feb 2009 18:42:26 +0000 http://www.gnorb.net/?p=1126#comment-81334 Hi, My name is Austin. I am having a similar issue with what you are describing! And needless to say I have many soul-searching moments, thinking that all my dreams and my life will be over and shattered with. But then I told myself that I just gotta plow through. I am going to the GI doc to let her know about my own research and hopefully she will administer the proper tests. Would you email me tell me about your progress? I would be really comforting to me to know what is like for someone else who had experiences withis. Please email me :) that would mean so much to me. Thanks! Austin Hi,

My name is Austin. I am having a similar issue with what you are describing! And needless to say I have many soul-searching moments, thinking that all my dreams and my life will be over and shattered with. But then I told myself that I just gotta plow through. I am going to the GI doc to let her know about my own research and hopefully she will administer the proper tests. Would you email me tell me about your progress? I would be really comforting to me to know what is like for someone else who had experiences withis. Please email me :) that would mean so much to me. Thanks!

Austin

]]> By: Gnorb http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-80490 Gnorb Thu, 11 Sep 2008 23:10:49 +0000 http://www.gnorb.net/?p=1126#comment-80490 Hey Raji, Doing well. Been busy with the house purchase and, frankly, haven't much felt like writing lately. I know it's unusual for me to take breaks like these, but I guess I hadn't realized how long it was since I last posted. I'll probably have something up this weekend though: house purchase is official tomorrow as of 4:00pm, God willing. Thank you for the concern. -- G Hey Raji,
Doing well. Been busy with the house purchase and, frankly, haven’t much felt like writing lately. I know it’s unusual for me to take breaks like these, but I guess I hadn’t realized how long it was since I last posted. I’ll probably have something up this weekend though: house purchase is official tomorrow as of 4:00pm, God willing. Thank you for the concern. — G

]]> By: Raji http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-80489 Raji Thu, 11 Sep 2008 06:41:05 +0000 http://www.gnorb.net/?p=1126#comment-80489 I hope you are fine? you haven't posted in awhile? I hope you are fine? you haven’t posted in awhile?

]]> By: Nathan Smith http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-80467 Nathan Smith Fri, 22 Aug 2008 12:42:17 +0000 http://www.gnorb.net/?p=1126#comment-80467 Yeah, trust me moving away from South Florida helped my health out - that place is like hell with palm trees and is full of angry and bitter people. Feel better and follow your doctor's (and wife's) advise. Yeah, trust me moving away from South Florida helped my health out – that place is like hell with palm trees and is full of angry and bitter people. Feel better and follow your doctor’s (and wife’s) advise.

]]> By: Gnorb http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-80466 Gnorb Fri, 22 Aug 2008 11:44:16 +0000 http://www.gnorb.net/?p=1126#comment-80466 Better is relative. Mind you, I could be doing a lot worse, and had I not jumped on this I probably would have. But will I be feeling 100% again, like I had when I was younger? That I don't know, though I'm with you in hoping. Better is relative. Mind you, I could be doing a lot worse, and had I not jumped on this I probably would have. But will I be feeling 100% again, like I had when I was younger? That I don’t know, though I’m with you in hoping.

]]> By: Raji http://www.gnorb.net/1126/gastroparesis-not-really-but-maybe-just-barely#comment-80465 Raji Fri, 22 Aug 2008 06:45:19 +0000 http://www.gnorb.net/?p=1126#comment-80465 I hope you are feeling better now. Take Care. I hope you are feeling better now.
Take Care.

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